Genetics and Insurance - The British Society for Genetic Medicine

About

The British Society for Genetic Medicine provides a forum for professionals involved in genetics and genomics as a clinical service and research.

As an umbrella organisation, our membership includes a wide spectrum of clinical, laboratory and research disciplines, not only in specialist genetic services but throughout the health professions.

The Joint Committee on Genomics in Medicine

The Joint Committee on Genomics in Medicine is a tripartite committee of the BSGM, RCPath and RCP, with representation from other professional bodies and patient organisations. It provides a unified forum to co-ordinate activities across a wide spectrum of organisations, particularly to promote and maintain the highest standards of practice in clinical and laboratory applications of genetics in medicine and to co-ordinate advice on service issues and workforce planning.

For its remit, membership, and minutes, please visit

The Association of British Insurers has produced information about the types of policies and genetic information.

There is a useful set of FAQs about genetics and insurance, including the use and disclosure of the results of genetic tests obtained not only through clinical services but also through research studies.

The ABI and the Department of Health have published an updated Code on Genetic Testing and Insurance (2018). It explains what an insurance company does and does not need to know about the genetic testing you may have had when you apply for insurance.