BSGM Lunch & Learn - May 2026: From innovation to impact: unlocking patient access to innovative rare disease medicines

About

The British Society for Genetic Medicine provides a forum for professionals involved in genetics and genomics as a clinical service and research.

As an umbrella organisation, our membership includes a wide spectrum of clinical, laboratory and research disciplines, not only in specialist genetic services but throughout the health professions.

The Joint Committee on Genomics in Medicine

The Joint Committee on Genomics in Medicine is a tripartite committee of the BSGM, RCPath and RCP, with representation from other professional bodies and patient organisations. It provides a unified forum to co-ordinate activities across a wide spectrum of organisations, particularly to promote and maintain the highest standards of practice in clinical and laboratory applications of genetics in medicine and to co-ordinate advice on service issues and workforce planning.

For its remit, membership, and minutes, please visit

A BSGM 'Lunch and Learn' online session, bringing together members from across the Society to learn and discuss topics of interest to all.

During this month's Lunch and Learn, we will hear from Rosie Lindup, Senior Policy and Public Affairs Manager at the UK BioIndustry Association (BIA) about their recent report, From innovation to impact: unlocking patient access to innovative rare disease medicines.

Rosie works at the BIA, the trade association for the UK's innovative life sciences and biotech sector. She leads the BIA's policy work on regulation and access for innovative medicines, supporting BIA members to deliver transformative treatments to patients. This includes overseeing the BIA's Rare Disease Industry Group (RDIG) to address specific issues affecting access to medicines for rare conditions. Outside of the BIA, Rosie is a trustee at Metabolic Support, the umbrella patient organisation for people living with and affected by Inherited Metabolic Disorders.

Rosie will be joined by Andrew Olaye, General Manager UK & Ireland at Orchard Therapeutics. Andrew is also the Vice Chair of the BIA Rare Disease Industry Group (RDIG).

All sessions will be recorded and available via the BSGM website for members unable to attend live.

If you are unable to attend and have any questions you would like to submit in advance please send them to the events team at events@rsb.org.uk

Upcoming events

BSGM Lunch and Learn - Wednesday 24 June 2026

BSGM Lunch and Learn - Wednesday 22 July 2026

Past events

For recordings of our previous talks in this series please see the members area of the BSGM website: Lunch and learn

Cost and booking

This event is free to attend and open to all BSGM members (ACGS/AGNC/CGS/CGG/FGG) as well as non-members. Advanced registration to watch live is essential through the event page and the Zoom meeting link will be circulated ahead of the event.