• 27th March 2024

A BSGM 'Lunch and Learn' online session, bringing together members from across the Society to learn and discuss topics of interest to all.

Speaker
Nick Meade, Director of Policy at Genetic Alliance UK

Genetic Alliance UK is the largest alliance of organisations supporting people with genetic, rare and undiagnosed conditions in the UK, and runs the Rare Disease UK campaign. Genetic Alliance UK advocates for fast and accurate diagnosis, good quality care and access to the best treatments; and actively supports progress in research and engages with decision makers and the public about the challenges faced by our community. Rare Disease Day is celebrated every year on the last day of February, and on Rare Disease Day this year Genetic Alliance UK launched the Stats Behind the Stories report. The report is aimed at starting a conversation about pragmatic ways to better understand the population of people living with rare conditions in the UK and how we can improve their experiences. Nick will present this report, its findings, what can we learn from examining the most prevalent rare conditions, and implications for policy.

All sessions will be recorded and available via the BSGM website for BSGM Members who are unable to attend live.

If you are unable to attend and have any questions you would like to submit in advance please send them to Demetra Georgiou

We aim for this initiative to be genuinely useful to members and serve as a point of collegial conversation across professions and geographies; topics will be selected that are of broad interest and feedback is welcome as we develop the initiative.

 

Past events

For recordings of our previous talks in this series please see the BSGM website: Lunch and learn

Cost and booking

This event is free to attend and open to all BSGM members (ACGS/AGNC/CGS/CGG/FGG) as well as non-members. Advanced registration to watch live is essential through the event page and the Zoom meeting link will be circulated ahead of the event.

Instructions to register

Please log into mySociety (if you are not a member of the BSGM or its constituent groups, please create a free mySociety account with your name and email address). Then, click "events and conferences" where you will be able to book your place for this free event.

Contact

This event is being organised by the Royal Society of Biology for the BSGM. For any booking or website queries, please contact Beth Glynn-Ramsden at events@rsb.org.uk or on 020 3930 9927.

For any event queries, please contact Demetra Georgiou