British Society for Genetic Medicine Equality, Diversity and Inclusion Policy

Click here to read the recently published British Society for Genetic Medicine Equality, Diversity and Inclusion Policy

New guidance for clinical practice

This report addresses the retention of genetic family information and genomic test data in
health records. It is intended for health professionals, policy makers and those working in
health systems. It describes recommendations for practice relating to the retention of genetic
family records and medical records incorporating genetic or genomic information and makes
some recommendations regarding future policy development. The content applies equally to
paper and electronic records. This document is intended as a code of practice and
implementation should comply with GDPR requirements.

ACGS Conference 2023

Recordings of the presentations from the ACGS conference in Birmingham, September 11th and 12th now available via the BSGM Members' Area

Lunch and learn

Logon to the members' area via the button on the top right of the BSGM homepage

This series is a monthly education offering to the whole BSGM membership.

The impact of inversions and translocations from a national genome sequencing project
Characterising and predicting Huntington's disease progression: where AI meets ethics
UK citizens' jury on genome editing
The Wales SWAN (Syndrome without a name) clinic: a pilot study
A roadmap to increase diversity in genomic studies
The retention of genetic family records - guidance for clinical practice
An update of Genomics England’s newborn screening programmes
A review of newborn screening in California (overview of the programme and genome sequencing for newborn screening)
Review of newborn blood spot screening programmes in Europe
Current NHS newborn blood spot screening programme in the UK

BSGM: Enabling better healthcare through genetics and genomics


The British Society for Genetic Medicine

BSGM is an independent professional organisation whose purpose is to support the promotion, encouragement and advancement of genetic and genomic science in clinical and research practice for the public benefit.

BSGM is an umbrella organisation of its own members and the five professional groups shown to the right. 


Quick links to the constituent and special interest groups of the BSGM